OgA94
Joined 7 months ago
Anti-inflammatory diet
Has anyone with endo had success on an anti-inflammatory diet and how long did it take to notice improvement?
Lately my whole body has been inflamed and my digestive system is super constricted (read: constipated, bloating, and painful). Going low fodmap in these cases helps but I'm wondering long-term what success people have had with anti-inflammatory diets --since, as I understand it-- the inflammation is more or less the root to a lot of the gi issues with endo.
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Endometriosis leg pain management
I have endometriosis and one of my biggest symptoms is my leg pain. Some days (like today) I work from bed because my legs feel so heavy and weak, I worry I'll fall. The pain is like a mix of deep, throbbing pain and a "heavy" numbness with some tingling. It's super odd and not one I hear talked about as much. When I bring it up to my GYN they say that it is likely related to endo either through growth on my sciatic nerve or general inflammation, but they're not really sure how to help. I take Naproxen to help with the pain but it only takes off a "layer" of pain and doesn't make it go away. Stretching helps a bit too, so I do some in bed, but I feel super limited in my ability to manage this particular pain.
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GLP-1 type drugs
Have any of you tried GLP-1 type drugs for weight loss?
There's good and bad online about it (benefits vs harms). I also read it can help with endometriosis, but not sure if that's fake. I used to be naturally thin, but over the last 5 years I've gained 20-25 pounds and can't seem to do anything to get rid of it (calorie deficit, exercise, etc.).
A friend thinks it's likely also linked to how stressed I've been -- since our bodies hold onto fat when it feels in survivval/threat mode. So maybe if I could chill out my calorie deficit and exercise might finally work. Or...I could try a GLP-1?
2 Comments
Cold feet and hands
I have always had cold hands and feet — especially cold feet. I don’t like to wear socks because I have an issue that if my feet get warm, my whole body gets too hot.
I’ve been like this my whole life so I’ve never really questioned it, but I’m wondering if this is a circulation issue.
It would be great to have warm hands and feet and not be overheating.
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How do you assess whether a gynecologist is the right fit?
I’m trying to get better at “shopping around” for a gynecologist, especially in terms of feeling listened to and respected.
For those of you who’ve found a GYN you really trust:
• What questions did you ask (or wish you’d asked) early on?
• What behaviors or comments were green flags vs. red flags?
• How quickly did you know whether it was a good fit?
Concrete examples would be really helpful.
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Highly recommend low FODMAP for IBS-like symptoms with endo
For most of my life, especially the last 6 years, endo has come with a side of endless gut issues and IBS‑like symptoms. The endo belly (read: pregnant-appearing bloating), the painful cramps, and the bathroom roulette was this extra layer of chaos with all of my other endo issues.
For a long time, diet felt like a “nice to have” that would maybe help in a vague, long‑term way if I had the energy to overhaul my entire life. Then I finally worked with an endo dietitian and did the full low FODMAP process -- and I was honestly shocked by how fast my gut calmed down and how different my day‑to‑day felt.
Yes, the process is restrictive and very annoying at times, but it also showed me exactly which foods were my biggest symptom instigators, and that alone made me feel so much more in control. You are not meant to be low FODMAP forever, it's just to understand what the main FODMAPs cause issues for you.
Now, when I feel an endo flare brewing, dropping back into a low FODMAP baseline is my go‑to move to soothe my gut. Most of the time, I notice a real difference within a day or two, and it makes the rest of the pain slightly more manageable.
One thing I wish I’d had much earlier, though, is the Monash University Low FODMAP: The Cookbook. It’s technically made by researchers, but it does not read like a dry textbook. The recipes are genuinely tasty (I am a big foodie), practical, and it comes in a really beautiful cookbook format. 10/10 would recommend it to anyone navigating endo plus IBS‑type symptoms and wanting something that feels supportive rather than punishing.
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Amitriptyline for neuropathic pain
I was prescribed Amitriptyline for neuropathic pain, which has really helped my endometriosis symptoms--I have less cramping, fewer "phantom UTIs," and my leg pain (not sure how it related) went away, too. It also helps me go to sleep, which is great because I was also dealing with a bit of insomnia. HOWEVER, my GYN failed to mention to me that this medicine is traditionally created as an anti-depressant!! I have no problem with that, but I wish that had been clear when prescribed. An FYI for anyone received "pain" meds in the future.
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Cost of freezing eggs
What are people getting quoted for egg freezing? it's super expensive! I have a friend that got her eggs frozen in Spain because it's a lot more affordable, but it feels weird to freeze my eggs so far away in another country.
3 Comments
How to get endometriosis diagnosis?
I'm pretty sure I have endometriosis or a similar condition. My doctor says that everything I'm experiencing is normal, but I don't feel like it is. I’ve read the symptoms: painful periods, pain with sex, fatigue, bloating, nausea. That’s me. How can I advocate for my doctor to take me seriously and investigate if I have endometriosis?
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